Resource Links

The websites listed below can aid you in your search for additional information on Alzheimer's disease and related dementia.

Alzheimer Sites

Alzheimer’s Association Resource Center
Alzheimer's Association National office. Factsheets, articles, reports, outside links for family and professional caregivers. The Association's Greenfield Library is highly regarded and can be accessed through the webite.
http://www.alz.org

MEDLINEplus
MedlinePlus Medical Encyclopedia. National Library of Medicine. This introdction to Alzheimer's touches on disease traits, treatment, and practical advice for families.
http://medlineplus.nlm.nih.gov/medlineplus/alzheimersdisease.html

New York Online Access to Health – NOAH
This health metasite includes a comprehensive section on Alzheimer’s disease and dementia with access to several hundred outside resources, many of which are links to the Alzheimer’s Association chapters and national office. Topics include basic information, diagnosis, genetics, complementary and alternative treatment, behavior, sexuality, grief, legal and financial issues. The Web site also carries newsletters, Alzheimer statistics, and more.
http://www.noah-health.org

Hardin MD – Hardin Meta Directory
Hardin MD includes a section on Alzheimer’s disease with its metasite.  Notable are the brain images and links to the Web sites of institutions not easily found elsewhere. 
http://www.lib.uiowa.edu/hardin/md 

Alzheimer's Disease Education & Referral Center (ADEAR)
ADEAR is a clearinghouse sponsored by the National Institute on Aging. ADEAR maintains information on Alzheimer's disease research, diagnosis, treatment, drugs, and clinical trials, and Federal Governement programs and resources.
http://www.alzheimers.org

Unraveling the Mystery
National Institute on Aging. This on-line booklet provides basic information about Alzheimer's disease and research, and includes numerous graphical representations.
http://www.alzheimers.org/unraveling/index.htm

Mayo Clinic Alzheimer's Disease Center
The Mayo Clinic furnishes easy-to-understand facts and information on alzheimer's and various aspects of caregiving.
http://www.mayoclinic.com/invoke.cfm?id=DS00161

Alzheimer and Dementia Care Channel
Eldercare Online.The Eldercare Online Web site provides in-depth articles on the disease, behavior management, and highly specific areas of caregiving.
http://www.ec-online.net/alzchannel.htm

Rush manual for caregivers
Rush Alzheimer’s Disease Center, Chicago, IL.This 115-page manual covers the broad range of disease management and caregiver topics.
http://www.rush.edu/patients/radc/pdfs/Caregivers%20Manual.pdf

Caring for the patient with dementia
Geriatric Research and Education Clinical Center (GRECC) – Minnesota). The Minnesota GREEC offers its dementia caregiving and disease management pamphlets free of charge from its Web site.
http://james.psych.umn.edu/~grecc/caring.htm

Care4ELDERS
Eymann Publications, Inc. Brief and easy-to-understand, practical information for those providing direct care at home. The Web site includes Alzheimer’s Home Companion, an electronic version of the print newsletter, which contains practical tips on caregiving. Additional links offer news and insights geared especially toward administrators and trainers, not easily found elsewhere.
http://www.care4elders.com/home.phtml

Practical guide to Alzheimer’s dementia and driving
The Hartford. The Hartford Insurance Company offers advice on assessing the driver, transitioning to not driving, and how the dynamics of family members plays a role.
http://www.thehartford.com/alzheimers

Alzheimer Research Forum 
This Web site is a compendium of news, articles, discussion forums, interviews, a diagnostic and treatment guide, a directory of drugs and clinical trials, and research advances.
http://www.alzforum.org

Best practice of medicine, dementia, diagnosis, and treatment
Merck Medicus. Gives the professional some basic information stressing that Alzheimer’s is a treatable disease. Suggests how to deal with the person with Alzheimer’s and their family members and includes responses to commonly asked questions.
http://merck.praxis.md/index.asp?page=bpm_brief&article_id=BPM01NE09

What are the stages of Alzheimer’s disease? 
Ageless Design, Inc. This Web site describes the disease traits of two of the common methods on staging.
http://www.agelessdesign.com/FAQ-Stages.htm

National Association of Professional Geriatric Care Managers
Represents the social workers, nurses, and others who provide professional consultation to caregivers and people needing assistance with long-term care issues and financial management.
http://www.caremanager.org

Family Caregiver Alliance
(800) 445-8106
An internet site offering information on every facet of caregiving for dementia. You'll find help with care planning and decision making, and timely articles.
http://www.link2care.net

Genetics home reference 
National Library of Medicine.A new Web site of consumer information on diseases with a genetic background. Each entry includes a description of the condition and the genetic traits, including the gene symbol, the location, and the effects of the mutant form.
http://ghr.nlm.nih.gov

Alzheimer’s Association Resource Center 
Alzheimer’s Association National Office. The Alzheimer’s Association national Web site provides information on Creutzfeldt-Jakob disease, Frontotemporal Dementia/Pick’s disease, Huntington’s disease, Lewy Body dementia, Normal Pressure Hydrocephalus, Parkinson’s disease, Vascular dementia, Binswanger’s disease, Wernicke-Korsakoff syndrome, Down syndrome, Chronic Wasting disease.
http://www.alz.org/ResourceCenter/ByTopic/RelatedDisorders.htm

emedicine.com
Comprehensive articles on related disorders providing clinical background, diagnosis and treatment (including medications and care), prevention, and prognosis.  Search by the related disorder name in the Search box.
http://www.emedicine.com

Frontal lobe dementia 
A comprehensive article from the John French Alzheimer’s Disease Center newsletter, describes the common disease traits, the confusion with Alzheimer’s, the most difficult daily care issues, the impact on the family, and current research.
http://www.pdsg.org.uk/articles/JDFC-1.htm

Normal pressure hydrocephalus
UCLA Department of Neurosurgery.
http://neurosun.medsch.ucla.edu/Diagnoses/Adult/AdultDis_1.html

Parkinson’s disease Index
Wake Forest School of Medicine
http://www.bgsm.edu/bgsm/surg-sci/ns/pd.html

Vascular dementia - VaD (multi-infarct) 
University of California, San Francisco.
http://Memory.ucsf.edu/Education/education_vad.html

Treating Alzheimer’s
Alzheimer’s Association National Office. Provides detailed articles on abroad treating cognitive symptoms, agitation, alternate treatments, and monitoring progression.
http://www.alz.org/PhysCare/Treating/overview.htm

Alzheimer’s disease drugs and therapies
Alzheimer’s Research Forum. Alzheimer medications are described for their use and pharmacological traits.
http://www.alzforum.org/dis/tre/drt/default.asp

lInternet Drug Index
A searchable drug index by brand and generic names in Spanish and English.  Each entry includes a description, warnings, dosage, overdoses, side effects, and drugs that affect it. 
http://www.rxlist.com

ClinicalTrials.gov
National Institutes of Health. Provides patients, family members, health care professionals, and members of the public easy access to information on clinical trials for a wide range of diseases and conditions.  Provides background information on the trial, as well as eligibility and contact information.  Type “alzheimer’s disease” (without the quotation marks) in the Search box.
http://www.clinicaltrials.gov

Alzheimer’s Disease Education and Referral (ADEAR)
National Institute on Aging.
http://www.alzheimers.org/trials/index.html

Alzheimer’s Disease International (ADI)
ADI supports services for patients and families throughout the world and sponsors excellent conferences that are held in a different country each year. This site also Provides many links to the home pages of  Alzheimer’s Associations and societies around the world for fulltext language materials.
http://www.alz.co.uk/

Alzheimer’s and Related Dementia Association of NSW, Australia
This Web site includes language resources. Sometimes just a reference is posted but frequently the actual piece is linked. Some materials require special character sets be present on the viewer’s computer (Chinese, Arabic, etc.).
http://www.alznsw.asn.au/nesb.htm

Alzheimer Europe
Notable is the highly useful “Tips for Carers”  section on the Home page which covers onset, communication, mood and behavior change, activities of daily living, medical and physical issues, and care for the caregiver. Alzheimer Europe works closely with the European Alzheimer's Disease Consortium (EADC).
http://www.alzheimer-europe.org/index.html

Spanish
Visit the following sites for Spanish language materials

Alzheimer's Association National office
NOAH
ADEAR
MEDLINEplus
Family Caregiver Alliance

The ALZHEIMER page
Washington University, St. Louis, Missouri. A longstanding, extremely active email discussion group that includes both family caregivers and healthcare professionals.
http://www.adrc.wustl.edu/alzheimer/subscribe.html

Alzheimer support
This site, started by a caregiver, includes both a message board and a chat room along with some basic Alzheimer information.
http://communities.msn.com/AlzheimersSupport

AlzheimerSupport.com
A chat room and message board with support group leaders and moderated chats with Alzheimer experts.  Find chat rooms by state, city, and zipcode.  http://www.alzheimersupport.com/community

Inernet Relay Chat (IRC)
Comprehensive list of Alzheimer's chat rooms
http://www.chatmag.com/topics/health/alzheimers.html

DASN International
Dementia Advocacy and Support Network. Yahoo Groups.
A support group for people with dementia rather than for caregivers.
http://groups.yahoo.com/group/DASN